#100daysofhomeed

Just wanted to add some pictures for a change.

Here are our bookcases! I have been thinking a lot about our journey and the prevailing theme is literature.

If you all read together, for pleasure, you can't go wrong.

Harriet's book box.

Lily's/family book shelf

Hannon's book shelf

Natasha's book shelf

And Dominik's to come (of course). :-)

Natasha x

Problems of an Autist!

Today, Dominik saw the physiotherapist for a progress report and he has been discharged! 

This is as a direct result of his dedication and resolve. The improvement seen by us (and confirmed by Sebastian) is remarkable. He has a normal bend at his ankle already (the surgeon was worried that he would not even be able to get it to 90 degrees, let alone exceed it!). I am so thrilled for him. He is elated. Genuinely happy with a real world achievement. Properly proud of himself. For a person with PDA this is a massive accomplishment. 

He has finally dedicated himself to something and it has PAID OFF! No begging. No bribing. No threatening. Not even any nagging! 

He is finally seeing what I have known was there all along...huge potential. He told me himself that he has had a massive confidence boost. 

This operation was a catalyst for him even though I was so angry with myself for letting it happen. Ultimately it seems that it was for the best. 

It has provided the ideal test for Dominik. His well-being and quality of life were truly on the line and he rose to the challenge in a super-human way.

Keep the faith lovelies. <3

And now, on to Autist problems!

Because Dominik has now recovered (and exceeded expectations!), I need to book our rifle shooting classes! 

(I am sure I can almost hear the hysterical laughter coming from fellow PDA warriors!)

In writing the email (because I don't do phone calls) I became acutely aware of the reality of Dominik and people and ammunition all in the same place in real life. I'll be honest here, I'd have chosen pretty much any other sport/hobby/activity first. 

I intended to write a standard enquiry email but it became what I am sharing below. It includes some pertinent points and I'm proud of my advocacy...I think. 

And therein lies the Autist problem...was I too honest? 

Is writing an email like this a good idea? 

Have I prejudiced them from the outset? 

Should I have let him try? 

Urgh. This is so confusing for me and I have no idea if it would be confusing for a neurotypical parent! 

Here's the email

"Hi, 

My names Natasha.

I would like to bring my 12 year old son along to have a taster session with a view to both of us taking beginner classes.

I think it would be £60 each (plus the £5 each for safety and taster?) is this right?

My son has special needs (ASD) so I am joining him as his carer. I do not however envisage any problems outside of over-enthusiasm and possibly over-confidence!

He has just had an operation on both of his Achilles Tendons and as a result, can now stand properly. on his flat feet for the first time since he was around 8 year old. 

His amazing management of the surgery and his recovery are the main reason we are coming. It is the only hobby he is willing to try and I’d love for this to be a success.

He is home educated so is used to being self-directed. His only other 'class' has been parkour (free-running) and he was forced to stop that due to his shortened Achilles tendons which meant he could not balance well enough to progress.

He is a massive fan of weapons in general as a result of his love for COD games and other first person shooters.

To give you an idea of his dedication to the subject, one of his last full days out was to Wrest Park for a St George’s Day event. He was able to identify pretty much every weapon he saw in each 'zone'. It was so much fun and he impressed those who bothered to actually listen to what he was saying/asking.

Please confirm that it would be ok for us to come along, or if you think there may be a different way to give him (us) a taster, I’m happy to hear any suggestions?

Finally, would you please confirm/suggest dates as soon as possible so I can plan things accordingly.

I look forward to hearing from you,

Happy New Year,

Natasha"

Did I over share? Did I advocate? I don't know but I'm looking forward to finding out.

In other news, Harriet is still a climber and will be visiting a local climbing centre this month, Hannon cannot decide on any new classes this term and has refused climbing, kayaking (because of the day of the week) and archery. Lily is devoted to roller skating and is improving fast. We have a bet on now that if she can beat me in a race before Easter she can have a new pair of skates of her choice. I cannot wait to see her skills develop. Lily is also learning Spanish and will continue with Beavers and Cheer-leading. 

As for me, I'm itching to begin a career. I just cannot decide which area I want to focus on. I am torn between gaining a TEFL qualification (so we can travel again) and following my heart towards working with families and children and young people. Such a big choice...could I manage both?!

Enough from me. There is a sleep-over here tonight and as you can imagine, there is not going to be any sleep happening!

Happy New Year. 

May 2017 being you joy, health and love.

N x

PS - 

It's here again!

In what seems like the blink of an eye, it's Christmas time again. This is my third Christmas as a blogger! Where did that time go?

So, this year, dare I say it, it almost feels calm!

None of my children have asked for very much this year and I think this has had a large part to play in alleviating the usual stresses! We are all very excited and have even agreed that we will put up our decorations a tad earlier than usual. Cannot wait til the weekend!

Dominik, of course, has had his main present already and given that he hasn't asked for anything else, the rest will be sure to be a pleasant surprise.

I should probably fill you in on life after surgery! Dominik had his casts removed last week after what felt the longest six weeks of our lives! He hated using the commode almost as much as I hated him using it to be honest! So glad that is behind us now.

The first day he was incredibly nervous...refusing to put his feet down and insisting on using the wheelchair after a week of not using it at all! We had booked to go and see Fantastic Beasts that night and I optimistically, didn't expect to be using the chair but we had to in the end!

The second day he hobbled around with his crutches mostly using them as weapons, which was a bit trying.

But, on the third day, he put them down and began to walk unaided! He is waddling (a little like a penguin) and refusing to bend his knees but the surgeon assured us that within three months he would be much more confident and competent. I guess the irony is that he is point blank refusing to stand up on his toes! He simply will not do it. Hope that's a good sign.

We saw the neurodevelopmental therapist after the casts were off too to check on the progress of his retained reflexes and that was also great news. His pupils are showing almost no stress response now and he was able to do the exercises far more easily than ever before. His back has now loosened up which makes every single movement easier and far less stressful for his entire body. We have been advised to seek a physiotherapist (not provided by the hospital, urgh) and a cranial osteopath so the pathway to wellness continues.

Back to Christmas!

Three years ago when I first began writing this blog, I wrote a long and detailed post about all the things I put into place around this time of year to make life less stressful and anxiety inducing for Dominik but here we are, three years on, and those measures, whilst still being on stand by, are no longer essential.

I am going to copy and paste some of my tips here from the original article in case they are of use to any new readers.

"For those of you with little ones who are at school, I imagine this time of year must be particularly challenging, not least because of the following;

• Mufti-days
• Carol services
• Timetable changes
• Nativity plays
• Decorations
• Staff absence 

to name but a few of the school based changes. 

But what about if we include;

• School holidays
• Visiting relatives
• Christmas trees and decorations
• Furniture being relocated
• Presents (and the accompanying anxiety)
• All predictability vanished
• Extra people everywhere

And perhaps even;

• Parties
• Father Christmas himself
• Family events
• Photo ops
• Different foods
• Different clothes
• An abundance of chocolate/sweets and treats everywhere
• Anxiety at its maximum surrounding the idea of being 'good/well behaved/deserving'

This is perhaps the most challenging time of year for us families with children (and adults) on the Autistic Spectrum so I thought I would share with you a few of my ideas designed to make life a little less stressful.

It is my hope that they will help things to run more smoothly (and joyously), in your home too during this Christmas Season.

Preparation, Preparation, Preparation.

This cannot be said enough! Prepare to the nth degree!

Let your child create their own special visual timetable (in the form of an advent calendar?) so that they can anticipate all the events at school and at home. Let them talk to you about everything that they remember about the changes and how that makes them feel and what they feel they can and cannot cope with.

Enable them to choose, to as large an extent as possible, what they want to participate in and what they don't in the school calendar and respect their wishes. Be the best advocate for your child that you can be and ensure that they get the Christmas they want too. Struggling is not a nice way to live at any time but at Christmas, when everyone else is smiling and happy, it is even worse.

Bribery & Coercion

I think it is all too common that parents begin using Santa (and presents) as a 'carrot/stick' once Christmas time comes around. Children all over the western world are worrying themselves half to death about their behaviour and whether or not they have been 'good' enough to deserve presents.

It is my firm belief that children will do well if given the environment in which they can do well.

Our special children are already doing their best all the time to manage without breaking down, so at Christmas, when there is so much more at stake, perhaps we should avoid pairing their behaviour with the promise of presents?

A lady told my daughter only the other day that if she 'screamed like that' Santa would hear her and she wouldn't get any presents. Not only was this extremely distressing for my daughter but it was horrible for me too! I do not use this kind of carrot and stick system in my house as a rule (I'm not perfect) and I have to say that to hear it come from a complete stranger was horrifying.

My daughter had been having a difficult (and busy) day and she was getting to the end of her ability to cope (several different shops, in and out of the car, hungry and over-stimulated) and this lady simply made things 100% worse. Sigh.

So, yes, try your hardest to not equate their behaviour with good/bad....they are trying their best.

Shopping/Trips

Please, please, please, unless you have absolutely no choice (or alternatively, they want to come along), let them stay at home! The world is a crappy place for those of us who shun noise, smells, lights, people, being touched and garishness right now! Unless your little one wants to plan a trip (and gets complete autonomy over what happens on that trip, including when to call it quits), don't make them come along. A trip such as this can take days to wind down from even if it goes well. If it goes badly the guilt and shame and self-reproach from us perfectionists is almost too much to bare.

Visitors

Keep the number of visiting friends and relations to an minimum, or, at the very least, let your child hide out in their room (or in the room that is most comfortable for them) and do not force them to socialise if they don't want to.

As an Aspie adult I can tell you, being made to kiss, hug and chat to people who are basically a load of strangers, is traumatic and exhausting and certainly not 'fun'!

Please be an advocate for your child and warn any visitors, that if they are bringing presents, to expect them to be unwrapped on sight if they are seen by said children! If they do not wish for this to happen then should wait for the opportunity to 'sneak' them in unseen when they can be safely hidden and not add to the anticipation that our children are already feeling with regard to unopened presents, and the pressure to like them.

Also, tell these same visitors what treats/sweets/foods are acceptable in advance so you don't have repeated meltdowns over food.

If you can, decline any invitations that are non-essential. Visiting lots of different homes is stress-inducing due to the amount of unpredictability and frequent transitions.

If you do over-do it our little ones will soon unravel and will not have a chance to regroup and recover, and will therefore end up not enjoying the best bits that Christmas has to offer.

Decorating

Allow your child/children to take whatever role they wish in decorating the house and tree (or not). If they are anxious about decorations perhaps put them up as late as you can in family areas and allow any other children to decorate their rooms so that they don't miss out."


I have added a few tips and tweaked this a little but it is basically the same as it was in 2014.

I'd like to take this opportunity to wish you all a happy, fun and joyful Christmas.

Much Love, thanks for reading,

N x

The little things.

A few little things made me smile today and oh man, did I need to!

I just tucked everyone into bed and I wanted to share my joy at our achievement in this area! I'm sure all parents can empathise with traumatic bedtimes.

I used to sleep with Hannon and Lily in my bedroom. They used to have no set bedtime. They used to be awake until I could not be nice any longer! They seriously used to test my patience in the truest sense of the phrase and it was tough for me. I was a newly single mother of three, with two high needs children, trying to 'traditionally' home school a PDA child (!!!!) and getting used to a new-ish life living in Bedford, alone, dependent upon social security benefits.

So, I had to find a solution for bedtime before I lost my marbles!

Between us, we negotiated a new routine. Everyone in their own bedrooms. No electronics after 10pm. Read/play until they were tired if needed.

I set a new limit on food at bedtime too. I simply refused to make anything else after 9pm. That was when I 'clocked off' from the kitchen.

I think that because we came to this arrangement together, I was hopeful that it would work for everyone and give me back some of my much needed mental powers!

There were a few blips. Hannon and Lily shared a room for a while and then Hannon decided he wanted his privacy. Fair enough. We transitioned Lily into her own room over a week, reminding her every day it was happening and we hoped for the best! Then she used to sneak in her tablet for a bit (until Hannon caught her) but I think that was to ease in the change in her own way! No big deal.

Well, she doesn't even think about doing that now and she did so great!

They now both sleep in their own rooms and are in bed by 10pm.
No electronics.
No food.
No fighting.
No exhausted, grumpy mum!
Yay!

All consensual. All peaceful. All happy.

Hannon is now reading his sixth manga series (don't even ask how much this is costing because it is worth every penny) and has probably read them all several times over.

Lily is reading whatever she can get her hands on but mostly manga, rhyming stories and poems that are familiar.

Harriet goes to sleep whenever she damn well pleases!!! Hahahaha! Yup, the baby has no idea that she needs to sleep. She is learning so much (and loving doing so) that she simply thinks that she has no time to sleep! Sigh. It is tiring but so worth it. Today she spotted a bumble bee in a book and screamed because she clearly recognised that she had seen one earlier in the day. We had chased one through the flowers in the garden. She can now sign 'milk', 'dog', 'finished' and 'monkey'. She is confident, beautiful, smart and completely charming! But, I'm biased of course.

And last but by no means least, Dominik.

Dominik has found new life since we began brushing (to release all of his retained infant reflexes). He is currently focused on his comic dubbing (and some singing) and is even auditioning for parts in other people's comic dubs.

He has wowed me with his ability to learn new skills. He has learnt to use programmes such as: Audacity, Synthesia, Movie Maker, Paint Tool Psi (sp?), Dropbox and probably some more I've forgotten, in a little over a month!

He is researching information about microphones and sound proofing and is asking for equipment for his not-too-distant birthday. He is truly happy and satisfied. He is drawing on a graphics tablet that Lily let him have (she really did!) and improving so fast. He is barely gaming at all. He is making new friends daily, He has stopped obsessing over how many views his videos are getting on YouTube. He is asking about punctuation! He is also teaching himself how to play the keyboard! He is just enjoying life so much. I am not sure I ever thought I would see him like this. Melts me.

And what about me I hear you ask!

Well, I've been shit! I know!! How is that possible?

I think what happened is that life got a bit 'quieter' (with all the kids doing so well) and then my world came into focus for the first time in a very long while.

I've struggled to reconcile being alone if I'm being completely honest with myself. I am angry and disappointed that those who undertook this journey with me are no longer there beside me.

I am bereft at the reality that my own mother is not offering me some extra support right now given that she was with me during two recent Dr's appointments where they both said that ideally, I should be in hospital.

However, I've started to feel a little better and am slowly leaving the fog behind. That is mostly because of my smashing friends and my growing support network.

Ok, I know these groups can't do anything practical on the kind of scale that I actually desperately need and want (a few days off), but they can listen, console, empathise, advise and perhaps most importantly, make me laugh. And that is what they have all done in their own ways.

It really is the little things that cumulatively make the most difference in normal, daily life.

No, my mum has not offered to give me a few nights off (shame really given that I have had only 7 in 12 years) but, my days have become less dark because there really are people out there who do care about me.

I know there are, because they tell me so.

N x

Some of our unschooling wins!

I thought it was about time I mentioned a few recent unschooling wins!

Lily is now reading almost fluently and loving her new-found freedom. Not only is she better able to communicate with and understand the world around her, she is also brimming with a new level of confidence in her own ability to learn!

She has gone from reading simple children's bedtime stories, to young adult manga in a matter of weeks. She has revolutionised her own bedtimes in the process. She is now getting in to bed without any electronic media and she is reading (and sometimes drawing) until she feels tired. This doesn't mean we are without incident completely, every night, but it does mean it is far more manageable and that Lily is far calmer and happier.

We have talked again bedtimes as a family, but we are all agreed that they are working really well as they are and we all feel that we are benefiting from them in a positive way. This means we maintain the status quo. Yay!

Hannon and Lily get into bed at 9pm, with all electronics gone by 10pm and then reading for as long as you wish. Dominik stops gaming by 11pm and is in bed with his PS4 off by 12. He has chosen to have his tablet, as he will only read online. He is currently immersed in Undertale fan comics (more on this later).

Lily has also learnt to write by hand. This is something that has never come naturally to the boys, but Lily has taken to it like a duck to water. The boys are happier to type. Full stop. They do not have the skills at the moment to hold a pencil comfortably so typing is far quicker and feels nicer. They can both spell well and Dominik requested that I buy an Usborne book on spelling, punctuation, grammar etc. so he is actively learning some grammar! :-) Again though, Lily has picked up grammar very easily. In fact, I'm not sure we have even talked to each other about it. She may have heard me talking about it with the boys though. Either way, she rocks at punctuation! She wrote a note for my mum this week and it was simply beautiful. I will try and remember to upload a picture of it if that is ok with them. The envelope was even addressed - Beryl/Nanny - how lovely is that?

Lily has begun drawing her own little animations on her white board (her favourite and most used Christmas present by far!) almost continuously. She usually draws boys and girls and love hearts etc, but it is fabulous work.

She has been enjoying parkour and is a natural when she actually tries to be present during the lessons! Her physical abilities are extraordinary. She has also picked up some early tennis skills this week too.

I'm sure I could go on but I must tell you about the others.

Hannon has now learnt to use a second online animation programme. He is putting together little animations as well as making games. He is trying to perfect his YouTube intro at the moment. He has also made a few vlogs which seem to get more views than his gaming, much to his surprise!

Hannon has had a friend here for a sleepover this week and it went so well! There are usually a few skirmishes during a visit but this time, not one! Hannon was kind, thoughtful and generous without even a second thought. He allowed our guest to use his computer pretty much continuously whilst he was here. He said it was because his friend doesn't get to use one otherwise, as he only has gaming consoles. This made me think about how important it is that gaming consoles do not forever overshadow personal computers. We have found that having the ability to type on a keyboard makes a huge difference to communication skills and especially spelling abillity. (Google autofil is an issue though so best to turn that off!!) Lily does not have access to a keyboard and is using handwriting. I guess it just goes to show that where there is a will, there is a way.

Today Hannon typed 50 messages to Dominik during a livestream! 50 messages! He even typed one in the font 'Windings' because he thought it would be funny! He even searched for a translator to do it for him!!! Hilarious. Dominik loved it too.

Hannon likes to make and solve puzzles (they all do actually..hmmm, WE all do!) and we were gifted a 'Monster Book of Monsters' which was great for puzzle solving! If you aren't familiar with it, it is a book that featured in the Harry Potter book series that needed to be stroked in order for it to be opened. Well, this one needs a four part code to open it or it gobbles and growls at you with a cute little mouth. They all had marvellous fun setting new codes and trying to crack them! It was brilliant! Every time one of them cracked a code they would open the book, take out what was in the secret compartment, and then replace it with their own (by now) not so secret stuff and say, "This is my book now", to which I would reply, "No it isn't, it is still Hannon's.". They would then say, "But it can't be, only I know the code, so it's now mine!". How could you argue with that logic? So, the book currently belongs to the person who last set the code!

Hannon has been helping around the house completely voluntarily. He is also helping to choose meals with me every week because he is so fussy it is causing me too much stress now. He is helping me choose foods for him that he will eat. Today he ate....wait for it......KIMCHI!!! Yes, my 9 year old boy ate kimchi and asked for more when he was finished. I am so proud of him for trying it. I lived in South Korea when I was 21 and refused to even try it! He is amazing.

Ok...move on Natasha.

On to Dominik. He has been reducing his competitive gaming time gradually. He is realising what we already know and that is that he is far nicer to be around when he doesn't do it at all. I know. It truly sucks. He is gutted at the result of our experiment. I think we all are actually. We all want him to be able to play the games he adores but we have all seen that without them, he can function far easier. We think it is simply over-stimulation. He gets so agitated that he cannot manage anything else. Not even a conversation some days. He is playing fewer games and he is spending more time with me. He is also spending more time with Hannon, which Hannon loves.

He has continued with his physical exercises too and says that he hopes to return to parkour one day and to take up archery with Hannon and I. He is optimistic about the impending neuro-developmental therapy and is eager to get on with it.

What an incredible change. He is actually taking charge of his own well-being in a big way. He is embracing changes to himself like never before. I have talked to him about the possibility that his behaviour may change once he begins the therapy and he seems to understand that too. I am so proud of the leaps he is taking. He is also monitoring his diet and getting dressed and undressed at the end of each day. Not made much progress with bathing nor teeth brushing but baby steps are good.

Oh, yes! The Undertale fan comics! Dominik has begun writing Undertale (a new-ish game following on from FNAF) fan stories! It is called 'fanfiction' and he loves it! He has written at least two of his own so far. He brought one to me to read and I began talking to him about grammar and punctuation and the importance of structure for your story-telling. At first he was frustrated and cross and then he listened to me read his story without any punctuation and then again, but with some punctuation.

He immediately identified the difference and realised that his lack of 'theory of mind' was inhibiting him. He had assumed we would all read it how he does completely forgetting that we are NOT him!

Once I physically showed him what would happen to the reader, he understood immediately. Yay!

Just proves that practical, one to one support is priceless.
Especially with children who have communication difficulties.

NB - That ('communication difficulties') is NOT just a phrase for SEN advocates to bandy about! It actually means something! You must be practical in your teaching! It must be real! NOT realistic! It cannot be learnt via a make believe story, at least not to any real depth of understanding in my humble opinion. It MUST happen TO THEM. Not AT THEM. I am speaking from experience!

Domink has been taking strides I was unsure I would see.

And I suppose I should include Harriet?

Oh, ok then.

She is still, completely lovely. Today we had a baby visitor and she simply hugged and kissed him, and hugged and kissed him for about the first ten minutes of his visit. She just wanted to love him. It was quite obsessive and she was doing it with no prompting at all. It was beautiful. She's an empath of the highest order! You could see him visibly start to relax even in this new, strange, noisy environment. He left his mum without a glance and began smiling and playing happily as soon as she was done.

She is also walking! Yay! Oh man, she took a few steps in the week before Easter weekend and then on Easter Sunday she just walked! Over 50% of that day, she was on her feet. She was so proud and excited that she had finally got the hang of it! She is now only walking. Within two weeks she has gone from crawling to only walking. The downside is that she now does not want to go to sleep. Ever!! It is tiring me out a little but, meh, it'll pass and she is so happy I don't care! Today we went for a little walk to the end of the road and last week she walked around her first park, choosing her rides and her explorations. Harriet is truly content and happy with her life right now.

Her comprehension is excellent. There are very few daily routines that she doesn't comprehend now. She can communicate what she wants very effectively too. She rarely screams for attention but she does 'tantrum' if she doesn't get her way. I am hoping this will get better when she truly understands that I will let her do anything that does not pose a significant risk to her or us (or the cat)!

Harriet is a blessing as I always knew she would be. There is no love like the love from Harriet.

Ok, that's enough.

I'm exhausted and I want to snuggle with everyone before they get to sleep!

Love to you all from our unschooling bubble.

N x

The bad and the good.

I have come to believe that after the bad comes the good.

I am not sure whether or not this is actually a philosophical question (a la Augustine) but for us, when there has been a true sh*t storm, there then comes a precious calm.

During this awkward time of  such rampant and blatant persecution in our country (world?) (whether that be because of your religion, race, disability, sexual preference, choice to home educate etc etc etc) big things are happening.

In the last week I have spoken to three different parents who had just/were about to de-register their children from school.

It is almost as if, by way of their blatant persecution and singling out of the alternative education community (NSPCC report, the saddening, recent (but not current) story about the little boy in Wales, the supposed ' hidden' ulterior motive whereby parents mean to 'radicalise' children, Loose Women), the government have in fact created a tidal wave of people having a closer look at this area.

So, for home education, one of my passions, parents are actually considering the question on a massive scale. This is giving the home education community an unprecedented opportunity to discuss their choice rationally, animatedly and perhaps most importantly, logically (because the success of individualised learning is well known and should be the gold standard for every educational establishment, not just home education), In this article from 2010 in the Guardian newspaper, you can see this quite clearly.

So, yes, this full frontal assault has resulted in an amazing opportunity for everyone. Let's talk about it. Properly. Using evidence and experience and whilst feeling confident in our ability to make the best choice for our family. Let's not fight amongst ourselves.

It is really no one else's business how you and I as parents choose to educate our child/ren. We're all doing our best!

The major point to be taken from these kinds of massive, light-shedding events (specifically the home education events in this instance) is that all choices/options are valid. We can't like them all (some are truly horrifying indeed in the broadest sense of these events) but we have to respect peoples rights to make them all.  It sucks at times, but mostly it is what makes us free. Choice, as they say in 'The Matrix', is the problem.

But, I digress, what inspired me to write this post in the first place, is my current experience with my kids.

This past week has been truly horrendous at times, ('throwing in the towel' kind of horrendous) but, that utter madness has been concluded with exactly the opposite degree of madness.

The level of achievement in my house right now!

The communication, the the life skills, positivity, learning ...you name it. I am so energised by the progress occurring in my house that I am hardly needing to sleep! For the first time in my life I am surviving on about 6 hours...and not feeling tired! Something must be fuelling me and I think it is the children.

Harriet is apparently in training to one day climb Mount Everest! She would surely be 'The World's Climbing Champion' ... in the under 12 months category!!! She is so fast, so sure footed and so determined. I simply stand by her and help her learn how to do it safely. It is heart-stoppingly nerve-racking but it is so worth it! She goes easily and confidently up the stairs now. She can get down from a bed. She attempts to climb up into her high chair and will push things around to climb somewhere she wants to go but can't!! She is also loving a set of little stackable eggs with a duckling in the middle. Watching her figure out how to do it is so fun. She also LOVES being read and sung to. 'Dear Zoo' and any song will do.

Lily has suddenly, and I mean over night, gone from not doing any maths to doing additions of three figure numbers, subtractions of three figure numbers and is beginning to understand the idea of 'times tables' and why they are helpful.

As an aside, I feel that school does this the wrong way around. They try to teach the times tables before children learn for themselves why they are good to learn! It is much easier when the child is motivated by their own experience to explain to them a new concept which they now know, will be helpful to them now, and in the future.

Dominik has yet to 'avoid' a single day of his physiotherapy work. He is still doing parkour. He too has suddenly found the relevant patterns in maths (but still won't work with any odd numbers!!!). He is also trying his hand at his first model kit. Loving it, but finding it challenging for his fine motor skills. Excellent! Oh, and he bought a comic with his own money! Unheard of. He is reading again.

(We realised tonight that we all have our own bookshelves..such a lovely moment.)

Hannon has just simply worked like a trojan on his coding. But, alas, I truly have no idea how well he is doing. I know that he is not nine yet, and that he began learning at the end of October after doing two tutorials with me, but is his progress considered 'good'?

Meh, who cares! Hannon is learning so much, so fast, and with so much enthusiasm that I do not think that the kindest measurement of this is one that means he feels he is in competition with anyone aside from himself! If he is happy with what he is learning, that is good enough for me. He is achieving to his highest possible standard. Brilliant.

He is also still attending Cubs after asking to quit in October! He's slightly wary but knows that I will allow him to stop at the end of any month if he wants to. But that has not happened yet!

He is actively enjoying things now. Partly because the pressure if off to stay and partly because the activities have suddenly become slightly more 'challenging' and it turns out, that he is excelling! Now that the number of 'games' that he doesn't know have decreased the tables have turned.

He has, on two occasions, been the only child to successfully complete both the co-ordinates task (he was also, coincidentally, the only child there who had not 'done them already') and the first aid task! He was STUNNED and so bloody proud. He really stands out among his peers when it comes to his ability to learn new skills (what we focus on most I guess...not what to learn, but how to learn) and the speed with which he can acquire them if he wants to.

He's a hidden, understated little gem. I cannot believe the grace with which he is growing up given that he is enveloped by two such demanding, strenuous siblings. He is my inspiration.

They all are. I just feel so privileged to be on this journey with them all.

To end, I have these motifs in my bedroom. Call me sentimental but they really do help.

Don't let anyone dull your sparkle
Be the change you wish to see in the world
She can do it
Life isn't about waiting for the storm to pass, it's about learning to dance in the rain
When it rains look for rainbows, when it's dark, look for stars

I have more than those but they are the only ones I can read from where I am sitting! :-)

My hope is that you feel inspired by this to consider your own challenges and demands in a slightly different way for a moment or two.

Without the bad, I wouldn't have the good.

Sleep well.

N x

PS - I am tired now but I want to publish, so please excuse any typos. :-)

Christmastime!

Just wanted to drop a quick note to you all to wish you a peaceful and love filled Christmas.

This year the build up in our house has been unusual to say the least.

I opened their lists as usual, after Halloween, and closed them at the beginning of December. I had one request from Hannon and that was it!

It seems that this year, my kids achieved the ultimate goal of being satisfied with what they already have.

If someone had ever even suggested to me that my children would have empty Christmas lists I would never have believed them. But, this year, they did and it has made me very happy.

Domink, who usually struggles to hold it together at all at this time of year is positively chipper! He tried ice-skating this week (!!!), has been fully participating in his parkour classes and even having an extra half an hour, one-to-one tuition every week (and loving it)! He has been exercising AT HOME DAILY!!! (Those of you who have less than athletic children will understand the enormity of that one thing alone!) He is not fighting it. He has not refused to do them once in over a week! He is even beginning to notice his appearance changing as he slims down, livens up and feels more positive about his self-image for the first time since he was a small boy.

He has only asked one question about what Christmas presents he is going to get and I answered it. He has yet to ask any more. This is bordering on the twilight zone right now!! He hasn't even been opening his Advent Calendar!! Incredible.

I had no idea that this was possible for Dominik. To see him happy, content, cheerfully optimistic, participating and enjoying life is the greatest feeling ever!

Although, one other thing does come close! Some of you may remember that last year he drew me a Toothless (from 'How to Train Your Dragon'), well, this year, he bought me one!!! He didn't even make me wait until Christmas to have it!! He bought it for me with his own money and at his own suggestion. What a feeling this is.

So, I guess I just wanted to say that working with your children, allowing them their space and thinking time, really can elicit great changes. I have truly practiced gentle parenting this year with great success. Harriet I think has been largely responsible for that blessing. And, as a result, my son (in particular and only highlighted because of this particular blog post) is growing into a delightful young man. He is always searching for ways to better manage himself and identify his own needs and he more often than not, does the right thing what given the chance to do so. What a little star.

Merry Christmas & Happy New Year everyone.

On to 2016!

N x

Building the New.

This encapsulates my life philosophy. I genuinely believe that my efforts are best placed in creating new 'stuff'. Be it thoughts, people, ideas, relationships, habits etc etc. I have never described myself as creative, but it turns out that I am! I only want to create new 'systems'. It thrills me. I think that is why the complex and completely meaningful relationships in my house fascinate me so much.

Anyway, during a conversation about school choices, I had these thoughts and things to say about what is going with us 5 at the moment.

Here is what I wrote. I wrote this to a friend, before I decided it would be a blog post so it is as honest as it gets!

Enjoy!

"Hey, So, which one did they choose? I'm dying to know! I used to work in all of them many moons ago.

They made a really big decision and it sounds like they have been empowered by the experience. It reminds me of me! When I was that age I had the choice of going to Bedford Academy (John Bunyan as it was) or Dame Alice (now merged with Bedford Modern but still a private school). I chose Dame Alice because even thought there was an exam and I would be going completely alone, it was still a safer, more predictable, more academic choice.

If I had gone to John Bunyan with my 'friends' I cannot even begin to imagine the different route my life would have taken.

It still wasn't easy and there were still mornings when my mum would have to sit in the car with me outside school and wait for me to stop crying and calm down enough to actually go in! But, go in I did, most of the time.

I switched again for my 'A' Levels to go to Sharnbrook. Now that transition was far from easy. I was back among all the kind of people who bullied me in my middle school!

{I edited out two paragraphs for privacy.}
We seem to be pretty busy. I'm not coping well with it but we are doing it! We have never had so many organised activities (4 per week) and trying to fit in 'quality' time is more difficult because I have so much more to do. Trying to get them all to comply and enjoy is hard going!

Dominik has a wobble every week at parkour. He has a meltdown within the first hour every week guaranteed. It is heartbreaking but he hasn't given up yet and is just beginning to see an improvement so I honeslty hope he decides to keep it up after half term. Feels like a test!

Hannon is coding his own video games which improve by the day! It is incredible to watch and he surpassed what I had learned in less than 24 hours!! He has taken to it like a duck to water. He has about 5 different pieces of game making software on his pc but this is the first one that has really worked for his learning style. So, after about 4 months of trial and error (and money!) he has finally found his niche...and it was free! lol [ETA - He is even drawing all of his own pictures which is a first as he doesn't even voluntarily write with a pencil. Whilst the rest are drawing, he has always resolutely refused. Until now! He is experimenting with drawing on the computer and even 3D drawing like he never could in real life. I think he has overcome a big fear in doing this. He even said he thinks he might start trying with a pencil in the future. I am so proud of him taking charge of what works for him. Lily has even let him borrow her graphics tablet in case he wants to try with a pen.]

Lily is reading like a pro! She is just flying through it now and she is even asking to learn Spanish! We wrote down all the ways I could think of to say 'I love you' in different languages last night. It was great fun, 

Although, to coincide with Lily's rapid developmental spurt, we have also had a complete regression to the aggression and violence.

I have come to accept that it is the price we pay for big leaps. It puts a lot of stress on her system and she falls apart a little at the seams. We're all doing our best to support her..well, except Hannon who mostly wants to torment her a little more. Grrr.

And Harriet! She is awesome. Teeth 9 and 10 on their way. Crawling brilliantly (although more of a drag than a crawl...think legless zombie!) and she has just started cruising the furniture! I had forgotten how scary this bit is but she is doing marvellously and takes the odd tumble with grace and humour! She can almost stand unaided and she is learning fast how to fall onto her bum! She is also loving any food you give her to try. Thanks goodness! I do not have time to cook yet another meal! She loves being wrapped and even tolerates my failures and re-wrappings with fun (that is, if you call having your ears bitten at all 'fun').

Me, well, I'm exhausted and was on the edge for a few days. My mum stepped in and gave me an afternoon last week which was my first one since Harriet was born. That is 8 months! So, well, it was great and I am ok now.

Well, now I've bored you with an essay (sorry) I'm going to blog it in an adapted form if that is ok with you? I won't mention you by name but I will say how the blog came about.

PS - Thanks for asking how we are. You'd be amazed how few people actually do and I sometimes forget that great things are going on here, even when I am too exhausted to fully appreciate it all. Being able to write it down really helps.

Big hugs xxxxx" So, there you have it. That's a short summary of how we are all building and creating in my house! Sorry I haven't blogged sooner. It's been a bit busy! I'm glad a friend helped me to make the time to blog today.

N x PS - I did my hair!

A kind of 'Unschool'?

So, I've been thinking a lot about school as I am surrounded by reminders of it right now.

What if there was a kind of school where it was no longer necessary to use our chosen 'labels'? We define and categorise all children in one way or another all the time. Whether it be by age, gender, ability, religion, special educational needs, levels of potential attainment etc etc.

Surely by using these labels we are reinforcing the very need for these labels because we continue to categorise, and completely unintentionally, stigmatise, our children?

What if we had a school system that was by its very nature all-embracing? Where nobody was stigmatised. Would we not then grow a society that was also, all-embracing and non-stigmatising?

By removing categories that are essentially arbitrary choices of measurement anyway, we would be more open to measuring children (and society) in more meaningful ways.

Do our adopted measurements and categories really tell us what we need to know about our children anyway?

Would it not be nicer to offer our children a far wider choice of how they spend their time? Would it not be far easier to STOP categorising our children in unhelpful ways and START letting them find their own groups and interests?

By letting children choose their activities to a far greater extent, surely we would then see a whole different set of categories emerge? These categories would paint a beautifully intricate and interesting pattern I am certain of it.

My sociology head says it would be fascinating to watch and see what happened to a self-selecting group of children if given free-reign within a larger learning arena. Would they grow up to become dissatisfied adults or wholesome, well-rounded individuals? Would they be in jobs they hate or would they be following their passion?

NB - Whilst 'Lord of the Flies' jumps immediately to mind when seeing lots of children making their own decisions, let's remember that we will actually be there in this example, to participate! 

Imagine, a group of kids (self selected with no restrictions other than total number and geographical location...although, Skype live would be a great idea too), who get told that today they have a range of options, for 8 hours: gaming, gardening, science experiments, treasure-hunting, decorating, reading, astronomy, crafting, free playtime and the list goes on forever depending on what you can provide, and then imagine how the groups form and what we would learn about our children by letting them choose and then simply observing them?

When children are younger we spend a massive proportion of time simply observing them and not intervening all the time. Why does this suddenly stop? Why, at the age of 4 and a bit, do we suddenly feel the need to be directing them, when let's face it, up until this point they have all done (without exception) a pretty amazing job, with just their immediate family and a play-dates!

Woah...craziness, right? Kids learn without being drilled?! They just need to reach a certain level of emotional maturity for that particular skill to emerge?! They love to learn! Remember, a child learns more in the their first two years of life than they will learn in the rest of their life time put together!

All this got me to thinking about an Unschool.

The Unschool I imagine,  would be a little like a nursery school where (some would argue) you meet your most authentic friends (because you are drawn together by common interests), you look forward to going in the morning, you laugh a lot and have fun too! At nursery school, you are not defined by something arbitrary that an adult has chosen for you.

I think nursery school is amazing by the way! I sent my middle son to nursery school. Admittedly, at first it was because I was afraid that something bad would happen between him and my PDA son if I didn't step in, but, in the end it was because I loved, loved, loved their ethos. I loved it so much that I became a parent governor (a big deal for someone like me who is so completely anti-social).

The nursery school environment, when done well, is all about choice and being yourself. I bet you could speak to hundreds of nursery school teachers and they would be far happier when talking about the children they interact with than those teachers you meet who are teaching older children. Why is that?

And, I think, children pretty much love nursery. Well, perhaps not all children and perhaps not all of them love it, but, even our very sensitive special needs children, can navigate nursery fairly competently.

It is when we step in with all our 'categories' and 'definitions' that things begin to go awry.

I imagine no age categories, no ability categories, no special needs categories.

I imagine free play and movement. I imagine respect and compromise and discussion. I imagine natural consequences.

All of the above can only happen in a safe environment too by the way.

One that is without arbitrary 'rules' and 'regulations' and 'targets'. Where learning can move with the free flow of ideas and people. Those arbitrary measures we all cling to (hello Ofsted) are dooming our children and their futures because they refuse to evolve.

In my Unschool I don't see name calling nor bullying. I don't see local government funding issues. I don't see 'special measures'. I don't see homework (unless you want to of course and then yay! We'll help in any way we can!). I don't see 'lunch times' across the group. I don't see punishments. I don't see rewards. I don't see compulsory lessons.

In my Unschool everyone is exactly where they are meant to be. They can be tested if they desire but their level of achievement shall be measured by their own standards for themselves. Adults, of course can give their input and opinion, but the choice of whether or not to be happy about any changes rests solely with the child. If that success means only sitting and reading in the same room as other people, then that is completely fine. If that success is arriving earlier/later, then so be it.

In my Unschool, if a parent chooses to stay, then that is excellent but they must be willing to participate in the activities the children are doing if asked to. THIS IS NOT A COFFEE SHOP.

Perhaps adults would even be willing to share their own areas of expertise and hobbies. Imagine what diversity that would bring to the learning environment? I find that the best teachers are those who know their subject and their audience. Appropriately vetted, self-selecting adults would be so very welcome.

In my Unschool there would be no uniform. There would be no seat (unless you wanted one). There would be no compulsory hair styles nor shoes. There would be as many sensory rooms as classrooms.

In my imagination it would be like an official Unschool.

And, as every unschooler knows, at the very heart of the Unschool would be the children who make it all happen.

I love working with, learning from and being around children and young people.

I think we as adults are very quick to complain that children are becoming 'lazy', 'greedy', 'ungrateful', 'unskilled', 'unhappy' and 'unprepared' etc for their future as adults, but what are we really doing to change that?  

We need to be radical in our thinking. We need to start giving back to our children so they can feel empowered and capable again. This summer has been the most amazing one we have ever had. My four children have just blossomed since I fully embraced the idea that living peacefully and respectfully is the best way to go.

Now that our learning environment is becoming calmer and more joyous, the learning is blooming.

Domink has been to two classes in the past week. Two! That is more than he has EVER achieved before and we haven't even been brave enough to try since 2011. This week he went to make sushi and he had his first parkour lesson. He was STUNNING. He surpassed his own expectations with how well the events went. We talked about it a lot before he went and he was confident that he would perform well under the 'pressure' (his words, not mine) but he would not guarantee that he would manage it all. He had to go outside for a little run towards the end of the first hour of the sushi but that was all. He did it. He did not need any support at all during the parkour class which was 2 HOURS. Just incredible.

This is really thanks to unschooling. It is a miraculous learning style. It proves the adage that all children will do well if given the tools and environment in which to do so. Those who know Domink will understand the magnitude of what he has achieved.

Hannon has been learning how to code his own game in MIT's Scratch Programming Tool. I do not have the words to describe his dedication, his skills, his patience, his determination and his problem solving abilities during these past 10 days. What this has done for his confidence is incredible. If he were an adult who learnt a new skill this fast and applied it for the number of hours he has and with the attention to detail that Hannon has given to this, they would give him a pay rise!
 
Lily has been the exception. Right now she is not steady at all. I think she is finding it frustrating to not have the skills she needs to accomplish the things she wants to. 'The Sims' for example. She really wants to play it and every time we try to do it together, by the time she has finished designing the characters (again, for the fourth time) she doesn't actually want to play the game any more! This means we are getting nowhere when what she really wants is to start helping them 'live'. When we eventually have a family she is happy with, we will move on and she will have the most amazing variety of social stories made of her choosing. It will be a very useful learning tool for her when she is ready and I'm sure it won't be long given how much we're practising!

Harriet has cut two teeth with two close on their heels as she reaches her 6 and half month. She is sitting up competently and moving from her bum into the crawling position (where she does that baby rock...hahahaha) and she is trying to pull herself up! She has her first cold right now too, bless her little snuffles. She loves any food she tries during our baby led weaning. It is messy and fun!

So, an Unschool for everyone. What a thought.

Thanks as always, for reading.

N x

Addendum to "All arguments are NOT created equal"

Tonight, after reading a post from a member of one of the groups I belong to, I happened to look up what was meant by PACE Parenting and I tried to find out what a PACE course involved.

Well, I was fairly gob-smacked when I started reading to be truthful!

The description resonated so strongly with me that I felt my breath catch. How had I not heard of this?!

It was describing exactly how our house functions when we are all trying our best! These letters and the principles they represent are our conscious goal as a family.

I genuinely thought that what I do is just called 'parenting'. Apparently not! Which led me to thinking about how that could have happened.

How I could have such a minority idea of what 'parenting' is that it requires teaching to other parents?

To be honest, I pretty much always feel 'controversial' when discussing parenting with people...although, I am meeting a fair few super mums these days who are on the same page. You know who you are! ;-)

In truth though, 'parenting' is itself a far too complicated a word. It can be (and often is) easily manipulated by the mass media/culture depending on the last 'research' (see below).

There is always a new 'trend' that parents 'must' conform to or else they are risking possible isolation and/or ridicule because of their lack of  'parenting' skills. Sigh.

I do not subscribe to many things that are considered 'mainstream' and for me, 'parenting' simply means loving unconditionally. That's it. Simple right?

Well, guess what? Loving unconditionally is what PACE describes and that is what I tried really hard to explain in my last post (even though I'm not sure that I really did)!

I don't have to worry now though because here is an excellent description of PACE

By the way, I think the term PACE is now becoming widely used because the term 'attachment parenting' (that's the term I may use sometimes to talk about our ideas and philosophy) has become somewhat disparaged and is perceived to be a little 'fluffy' in modern times (*cough* thanks to the main stream media *cough*).

Well, not to worry because now here comes the latest 'parenting' trend in the form of PACE! Excellent stuff! It can't come soon enough.

Let's spread the love! <3

Not sure I should type the next paragraph because my Aspieness is confused about social convention (no shit right, please see above) and it is now too late to call Cara and ask her for her advice, so here goes nothing!

If any of you reading this would like to contact me to talk about how this works for your little people, with or without complex needs, please do get in touch, I'd love to think it through with you.

I guess you could say it was my 'gift' (as someone on the Autistic Spectrum) to be able to see these principles and apply them (fairly) easily to my own family.

Anyways, if anyone is still reading, thanks.

Take good care,

N x

EDITED TO ADD:

All of the courses I am finding about PACE appear to be aimed at those who are foster carers or adoptive parents, or people working in child protection fields and therapeutic and supportive roles etc. Very few courses are targeting actual biological parents. This is because the focus of 'attachment parenting' in these instances is NOT related to special needs children, nor even children in the 'majority'.

PACE is being 'sold' by people working for adoption agencies/fostering agencies to Local Authorities in order to support their fostering/adoption processes. Obviously, this is great news for all those children.

But, once again, I am left thinking that for some reason, the 'establishment' are perhaps hesitant to give these skills to everyone, sorry, I mean every parent as well as to everyone 'becoming' a parent if you know what I mean.

Imagine a world where the birth parents of all these children who find themselves in foster care were taught the principles of PACE? Surely it would have had a positive effect in at least some of the cases? Hopefully one day we will find out.

I am so sad right now because I know my children do not have any attachment issues (I parent using PACE principles already, doh) but what they do have are complex special needs governed by their senses and neurological conditions (causing me to parent this way in the first place if I'm being truly honest, they taught me everything I know) and if other parents don't know any of this yet (that just loving, accepting, understanding, listening, empathising etc etc works miracles) then they need to be told too!

So, please, fellow parents (and especially those of you with children with special needs), do not feel that you are being criticised by the mainstream and do not feel that you have somehow 'caused' your child's special needs just because so many of their difficulties cross paths with those who have suffered some kind of attachment malfunction.

What has in fact happened is that you now know that your child was born with these 'special needs' in order to teach you these important principles themselves...for free! Voluntarily! Not via some crazy expensive, mostly inaccessible course! Aren't we lucky?!

Kids ALL need showering with the principles of PACE (playfulness, acceptance, curiosity and empathy), shit, all ADULTS need some extra loving from the PACE principles too!

Go on, try it.

N x

PS - I really am going to sleep now.