#100daysofhomeed

Just wanted to add some pictures for a change.

Here are our bookcases! I have been thinking a lot about our journey and the prevailing theme is literature.

If you all read together, for pleasure, you can't go wrong.

Harriet's book box.

Lily's/family book shelf

Hannon's book shelf

Natasha's book shelf

And Dominik's to come (of course). :-)

Natasha x

And 2016 gets off to a flying start!

Where to begin?

Happy New Year to you all. What a whirlwind this year has been so far. It's like someone opened a door way or something. 'Stuff' (for want of a better word) is just flying into our lives,.

It is breathtaking in its speed.

But first a few thoughts on Christmas this time around.

Aside from one event, it was brilliant. I can honestly say it was all about the things that truly matter. No one was that fussed about presents (although they all love their tablets), it was about spending time together and having fun.

We had very few visitors but the ones there were made the event all the more special. I do wish visitors would have a little more time for everyone when they came though, but at least they care enough to come and see us. I love you all and we appreciate your time,

One small request on behalf of the kids before I move on,. Please try to to show a little interest in what they've been up to! I know its not the same as asking a child who goes to school, but try anyway! I know they bombard you with lots of information and that its mostly about things you've never hear of or things you have no interest in, but, well, ABC's  and mental arithmetic don't count as interesting either really if we're honest. What I am trying to say is that we should simply celebrate enthusiasm and happiness whatever the cause! My four would love to show you what they've been doing. They LOVE what they all do. Please, try to reserve judgement and witness what they are all achieving, even if it isn't something 'mainstream'. I think it is all the more impressive because it isn't! The 'mainstream' is exactly that...it is what most people can learn during the course of their everyday lives. It is the majority, the ;normal', the (dare I say it) mundane. Listen and watch what kids have to show or tell you, whoever they are. Listen even more carefully if they are passionate about it. This is where the true learning experience happens. Especially if they are passionate about. It is important to them. We ask children to pay heed to what is important for us (and society in general I guess) a lot  of the time but sometimes perhaps, we should spend some more time listening to them.

So, yes, where was I...The New Year!

Here's some of what has been going on. Obviously keeping a positive slant on it all. I don't find focussing on the bad bits helpful because they would then over shadow the progress and I don't want that! There have been some tough moments, of course, but what follows could not have happened as it did/does, without them. Every experience is a potential learning experience.

 # Lily!

Lily is pretty much reading fluently, and she is reading words that she doesn't know and they rarely pose a significant problem. She took to the 'hoverboard' like a duck to water. (No, it hasn't caught fire.) She was an amazing hostess at her own Birthday Party. She took to ice-skating like she was born to do it. She is a born 'mover'. Not sure where that will take her but I am sure it will be far. Her innate talent and the ease with which she learns new skills is inspiring. Her vocabulary and maturity also continue to amaze me. For example. we had our 11 year old dog, Tia, put to sleep in December and Lily chose to stay with her until the end (with my mum). Just incredible. The vet tried very hard to guilt me into removing her but I gave Lily the choice and respected her decision. She was amazingly pragmatic throughout. She was a little sad, but, she was also completely accepting and full of love. I am so proud of her. What an amazing human being. She has only spoken positively about Tia since she died and seems to be happy with the desicion she made. (As are Hannon, Dominik and I and we chose to leave.) Love you Lily.

 # Hannon

Hannon it seems is a GAME MAKER. He spends significant periods of time creating and refining various different game ideas. He researches his options. He learns from other people. He experiments with different ideas. He and Lily do 'voice-acting' for their own characters too! He also never. gives. up. His tenacity is awe-inspiring. He is so determined to succeed. It makes me so proud. He tampered a bit with magic over the holidays (and engineering) but has left those behind for the time being. He has also found the time to read at least 12 books since November and it is staring to get expensive!!! But, I obviously cannot complain.. It is simply a running joke.  I even went and bought him his own bookshelves and he is actually using them! Yay Hannon. I love you.

 # Dominik

Dominik has made some massive strides too. He has completed over a month of daily exercises designed to lengthen and strengthen the muscles etc in his lower legs. These can be painful and the demand from me is a daily one so I would never have guessed he would have this much staying power. He is giving this his all. I think a physiotherapist would be able to support him now he knows he can do it. Great progress.  He has also showered twice on the same day that I have asked him to do so! (A miracle for a child with PDA and SPD.) He has also been letting me brush his teeth...not everyday, but more than ever before! He continues to improve his sketching skills (with a new rubber and pencil sharpener) and practices almost daily. He has rediscovered his love of music and all things rhythm based. He seems to be 'pitch perfect'. He can whistle the tune his tablet whistles when he gets a notification and there is no discernible difference. He almost beat me at Just Dance too!!! (Unheard of!!! Along with Mario Kart, Just Dance is about the only other game at which I can do well!) He found something called a Lauchpad and is desperate to try one out. We discussed it and after having talked about the benefits of him having one of these, we actually discovered that he needs (and would prefer) an electric drum kit into which he can programme all the sounds he likes! And, the boon, we don't all have to listen to his creativity. (This will build on all the times we spent playing with Synthesia and a couple of other rhythm/music based visual games (DJ Hero being another)). I cannot begin to imagine what he will create but we are both itching to find out. I also think that the drum kit will have many more benefits...not least of which will be to further strengthen his legs and improve his physical health. His motor skills will also surely take another leap forward as will his proprioceptive skills I should think. This is just brilliant! Alongside his parkour and his rekindled love of creating his own smoothies really bodes well for the future! So proud Dominik, so proud of you. Mwah. Love you.

See, I told you 2016 hit the ground running!

And now for Harriet...well, that would be an essay! She's the best! You'd have to meet her to truly appreciate her awesomeness though. Suffice it to say, she LOVES to climb, point, bite and smile. :-P

And finally, here's my favourite (of favourite ever) picture of our Christmas 2015.

Too. Funny.

And no, Hannon was not like that all the time.

And a dear friend made all the hats for us. Thank you Cara!

Oh, and, the photo was taken by a lovely friend who spent Christmas Day with us. She also brought her beautiful shitzu -yorkie cross. We had such a lovely time.

It was certainly a Christmas that we will remember as being full of smiles and love.

Oh, and we did buy a few family games but by far our favourite is Sushi Go! Lots of fun. Deceptively simple, tactical card game that is hilarious and sneeky (think Uno I guess)!

Happy New Year!

N x

Addendum to "All arguments are NOT created equal"

Tonight, after reading a post from a member of one of the groups I belong to, I happened to look up what was meant by PACE Parenting and I tried to find out what a PACE course involved.

Well, I was fairly gob-smacked when I started reading to be truthful!

The description resonated so strongly with me that I felt my breath catch. How had I not heard of this?!

It was describing exactly how our house functions when we are all trying our best! These letters and the principles they represent are our conscious goal as a family.

I genuinely thought that what I do is just called 'parenting'. Apparently not! Which led me to thinking about how that could have happened.

How I could have such a minority idea of what 'parenting' is that it requires teaching to other parents?

To be honest, I pretty much always feel 'controversial' when discussing parenting with people...although, I am meeting a fair few super mums these days who are on the same page. You know who you are! ;-)

In truth though, 'parenting' is itself a far too complicated a word. It can be (and often is) easily manipulated by the mass media/culture depending on the last 'research' (see below).

There is always a new 'trend' that parents 'must' conform to or else they are risking possible isolation and/or ridicule because of their lack of  'parenting' skills. Sigh.

I do not subscribe to many things that are considered 'mainstream' and for me, 'parenting' simply means loving unconditionally. That's it. Simple right?

Well, guess what? Loving unconditionally is what PACE describes and that is what I tried really hard to explain in my last post (even though I'm not sure that I really did)!

I don't have to worry now though because here is an excellent description of PACE

By the way, I think the term PACE is now becoming widely used because the term 'attachment parenting' (that's the term I may use sometimes to talk about our ideas and philosophy) has become somewhat disparaged and is perceived to be a little 'fluffy' in modern times (*cough* thanks to the main stream media *cough*).

Well, not to worry because now here comes the latest 'parenting' trend in the form of PACE! Excellent stuff! It can't come soon enough.

Let's spread the love! <3

Not sure I should type the next paragraph because my Aspieness is confused about social convention (no shit right, please see above) and it is now too late to call Cara and ask her for her advice, so here goes nothing!

If any of you reading this would like to contact me to talk about how this works for your little people, with or without complex needs, please do get in touch, I'd love to think it through with you.

I guess you could say it was my 'gift' (as someone on the Autistic Spectrum) to be able to see these principles and apply them (fairly) easily to my own family.

Anyways, if anyone is still reading, thanks.

Take good care,

N x

EDITED TO ADD:

All of the courses I am finding about PACE appear to be aimed at those who are foster carers or adoptive parents, or people working in child protection fields and therapeutic and supportive roles etc. Very few courses are targeting actual biological parents. This is because the focus of 'attachment parenting' in these instances is NOT related to special needs children, nor even children in the 'majority'.

PACE is being 'sold' by people working for adoption agencies/fostering agencies to Local Authorities in order to support their fostering/adoption processes. Obviously, this is great news for all those children.

But, once again, I am left thinking that for some reason, the 'establishment' are perhaps hesitant to give these skills to everyone, sorry, I mean every parent as well as to everyone 'becoming' a parent if you know what I mean.

Imagine a world where the birth parents of all these children who find themselves in foster care were taught the principles of PACE? Surely it would have had a positive effect in at least some of the cases? Hopefully one day we will find out.

I am so sad right now because I know my children do not have any attachment issues (I parent using PACE principles already, doh) but what they do have are complex special needs governed by their senses and neurological conditions (causing me to parent this way in the first place if I'm being truly honest, they taught me everything I know) and if other parents don't know any of this yet (that just loving, accepting, understanding, listening, empathising etc etc works miracles) then they need to be told too!

So, please, fellow parents (and especially those of you with children with special needs), do not feel that you are being criticised by the mainstream and do not feel that you have somehow 'caused' your child's special needs just because so many of their difficulties cross paths with those who have suffered some kind of attachment malfunction.

What has in fact happened is that you now know that your child was born with these 'special needs' in order to teach you these important principles themselves...for free! Voluntarily! Not via some crazy expensive, mostly inaccessible course! Aren't we lucky?!

Kids ALL need showering with the principles of PACE (playfulness, acceptance, curiosity and empathy), shit, all ADULTS need some extra loving from the PACE principles too!

Go on, try it.

N x

PS - I really am going to sleep now.