Showing posts with label understanding. Show all posts
Showing posts with label understanding. Show all posts

Monday, 13 March 2017

UNschooling Life

This past week has been an enlightening experience.

We've felt energised by the warmer temperatures and the first signs of Spring so we've been out of the house more than in it I think. Just amazing. At last!

We've been to a park almost everyday and visited Wrest Park yesterday, (all with the Slackline). We even went swimming today. All 5 of us! It was so fun and it went so well. Proud moments.

One trip however, does stand out because it involved a life changing discussion for us all.

My youngest son and I went to 'town' (rare event) to visit the library and collect my new glasses. The other 3 children stayed at home with their nan so it was a treat to be out, just us two for a change.

We ran our errands and then decided to go to CEX and look at the games because H had some birthday money to spend (from his Dad!). He spent £6.50 on two games and decided to give his change to the homeless man that had asked us for some just before we had entered the shop.

As he walked up to the man to give him his money, a lady walked past and shouted, "Get a f*C^ing job.". I felt so sad and angry and disappointed all at once. My stomach took a nosedive and I felt sick.

After several seconds, I realised that I was truly outraged. That someone could show such little compassion almost floored me. H didn't hear what she had said, but I was upset, and I repeated it to him. He was easily as angry as I was.

This event has led to several discussions over the following days about how this could have happened. When did it happen? Has it always been this way?

We have now discussed it at length, and we are all in agreement that the next time we should witness something like this, we should say something.

It is time to stand up and be heard.

The misfits. The hippies. The carers. The children. All of you (us).

It is incumbent upon us to act now. It is time.

We're not advocating anything other than being compassionate and empathetic during your daily lives. We should all be sharing our goodness and shining our own individual light on dark places and dark people and dark acts. Things have to change.

I have always wanted to be kind but I guess it is presented as something meek and gentle (not very me!), so is consequently seen as a weak characteristic.

I think it is time that 'being kind' was seen as also being a courageous and (sometimes) loud characteristic!

Why not? Why can't we be kind, loudly? Share your good deeds! Spread your fortune and count your blessings! Speak out against injustice. Don't just sign petitions! Use your voice.

Let's face it, we are the peacemakers! I know that it is so difficult to invite conflict into our lives. It is uncomfortable and stressful for us to 'draw attention' to ourselves. I truly understand. But it is time now.  

Has society become so lost that it cannot even recognise kindness anymore? What if it has?

 
The following quote keeps me searching, learning, speaking out and acting.



For me, this is what unschooling is all about. The impromptu lessons and experiences that are immeasurable in their impact.

What happened during these conversations is life long learning.

This week my children and I realised that being kind and empathetic are the lock and key to true happiness.

Sending out lots of love tonight,

N x

PS - A friend shared this with me once and it seems pertinent.


Wednesday, 1 March 2017

#100daysofhomeed

Just wanted to add some pictures for a change.

Here are our bookcases! I have been thinking a lot about our journey and the prevailing theme is literature.

If you all read together, for pleasure, you can't go wrong.

Harriet's book box.

Lily's/family book shelf

Hannon's book shelf

Natasha's book shelf

And Dominik's to come (of course). :-)

Natasha x

Friday, 8 April 2016

Some of our unschooling wins!

I thought it was about time I mentioned a few recent unschooling wins!

Lily is now reading almost fluently and loving her new-found freedom. Not only is she better able to communicate with and understand the world around her, she is also brimming with a new level of confidence in her own ability to learn!

She has gone from reading simple children's bedtime stories, to young adult manga in a matter of weeks. She has revolutionised her own bedtimes in the process. She is now getting in to bed without any electronic media and she is reading (and sometimes drawing) until she feels tired. This doesn't mean we are without incident completely, every night, but it does mean it is far more manageable and that Lily is far calmer and happier.

We have talked again bedtimes as a family, but we are all agreed that they are working really well as they are and we all feel that we are benefiting from them in a positive way. This means we maintain the status quo. Yay!

Hannon and Lily get into bed at 9pm, with all electronics gone by 10pm and then reading for as long as you wish. Dominik stops gaming by 11pm and is in bed with his PS4 off by 12. He has chosen to have his tablet, as he will only read online. He is currently immersed in Undertale fan comics (more on this later).

Lily has also learnt to write by hand. This is something that has never come naturally to the boys, but Lily has taken to it like a duck to water. The boys are happier to type. Full stop. They do not have the skills at the moment to hold a pencil comfortably so typing is far quicker and feels nicer. They can both spell well and Dominik requested that I buy an Usborne book on spelling, punctuation, grammar etc. so he is actively learning some grammar! :-) Again though, Lily has picked up grammar very easily. In fact, I'm not sure we have even talked to each other about it. She may have heard me talking about it with the boys though. Either way, she rocks at punctuation! She wrote a note for my mum this week and it was simply beautiful. I will try and remember to upload a picture of it if that is ok with them. The envelope was even addressed - Beryl/Nanny - how lovely is that?

Lily has begun drawing her own little animations on her white board (her favourite and most used Christmas present by far!) almost continuously. She usually draws boys and girls and love hearts etc, but it is fabulous work.

She has been enjoying parkour and is a natural when she actually tries to be present during the lessons! Her physical abilities are extraordinary. She has also picked up some early tennis skills this week too.

I'm sure I could go on but I must tell you about the others.

Hannon has now learnt to use a second online animation programme. He is putting together little animations as well as making games. He is trying to perfect his YouTube intro at the moment. He has also made a few vlogs which seem to get more views than his gaming, much to his surprise!

Hannon has had a friend here for a sleepover this week and it went so well! There are usually a few skirmishes during a visit but this time, not one! Hannon was kind, thoughtful and generous without even a second thought. He allowed our guest to use his computer pretty much continuously whilst he was here. He said it was because his friend doesn't get to use one otherwise, as he only has gaming consoles. This made me think about how important it is that gaming consoles do not forever overshadow personal computers. We have found that having the ability to type on a keyboard makes a huge difference to communication skills and especially spelling abillity. (Google autofil is an issue though so best to turn that off!!) Lily does not have access to a keyboard and is using handwriting. I guess it just goes to show that where there is a will, there is a way.

Today Hannon typed 50 messages to Dominik during a livestream! 50 messages! He even typed one in the font 'Windings' because he thought it would be funny! He even searched for a translator to do it for him!!! Hilarious. Dominik loved it too.

Hannon likes to make and solve puzzles (they all do actually..hmmm, WE all do!) and we were gifted a 'Monster Book of Monsters' which was great for puzzle solving! If you aren't familiar with it, it is a book that featured in the Harry Potter book series that needed to be stroked in order for it to be opened. Well, this one needs a four part code to open it or it gobbles and growls at you with a cute little mouth. They all had marvellous fun setting new codes and trying to crack them! It was brilliant! Every time one of them cracked a code they would open the book, take out what was in the secret compartment, and then replace it with their own (by now) not so secret stuff and say, "This is my book now", to which I would reply, "No it isn't, it is still Hannon's.". They would then say, "But it can't be, only I know the code, so it's now mine!". How could you argue with that logic? So, the book currently belongs to the person who last set the code!

Hannon has been helping around the house completely voluntarily. He is also helping to choose meals with me every week because he is so fussy it is causing me too much stress now. He is helping me choose foods for him that he will eat. Today he ate....wait for it......KIMCHI!!! Yes, my 9 year old boy ate kimchi and asked for more when he was finished. I am so proud of him for trying it. I lived in South Korea when I was 21 and refused to even try it! He is amazing.

Ok...move on Natasha.

On to Dominik. He has been reducing his competitive gaming time gradually. He is realising what we already know and that is that he is far nicer to be around when he doesn't do it at all. I know. It truly sucks. He is gutted at the result of our experiment. I think we all are actually. We all want him to be able to play the games he adores but we have all seen that without them, he can function far easier. We think it is simply over-stimulation. He gets so agitated that he cannot manage anything else. Not even a conversation some days. He is playing fewer games and he is spending more time with me. He is also spending more time with Hannon, which Hannon loves.

He has continued with his physical exercises too and says that he hopes to return to parkour one day and to take up archery with Hannon and I. He is optimistic about the impending neuro-developmental therapy and is eager to get on with it.

What an incredible change. He is actually taking charge of his own well-being in a big way. He is embracing changes to himself like never before. I have talked to him about the possibility that his behaviour may change once he begins the therapy and he seems to understand that too. I am so proud of the leaps he is taking. He is also monitoring his diet and getting dressed and undressed at the end of each day. Not made much progress with bathing nor teeth brushing but baby steps are good.

Oh, yes! The Undertale fan comics! Dominik has begun writing Undertale (a new-ish game following on from FNAF) fan stories! It is called 'fanfiction' and he loves it! He has written at least two of his own so far. He brought one to me to read and I began talking to him about grammar and punctuation and the importance of structure for your story-telling. At first he was frustrated and cross and then he listened to me read his story without any punctuation and then again, but with some punctuation.

He immediately identified the difference and realised that his lack of 'theory of mind' was inhibiting him. He had assumed we would all read it how he does completely forgetting that we are NOT him!

Once I physically showed him what would happen to the reader, he understood immediately. Yay!

Just proves that practical, one to one support is priceless.
Especially with children who have communication difficulties.

NB - That ('communication difficulties') is NOT just a phrase for SEN advocates to bandy about! It actually means something! You must be practical in your teaching! It must be real! NOT realistic! It cannot be learnt via a make believe story, at least not to any real depth of understanding in my humble opinion. It MUST happen TO THEM. Not AT THEM. I am speaking from experience!

Domink has been taking strides I was unsure I would see.

And I suppose I should include Harriet?

Oh, ok then.

She is still, completely lovely. Today we had a baby visitor and she simply hugged and kissed him, and hugged and kissed him for about the first ten minutes of his visit. She just wanted to love him. It was quite obsessive and she was doing it with no prompting at all. It was beautiful. She's an empath of the highest order! You could see him visibly start to relax even in this new, strange, noisy environment. He left his mum without a glance and began smiling and playing happily as soon as she was done.

She is also walking! Yay! Oh man, she took a few steps in the week before Easter weekend and then on Easter Sunday she just walked! Over 50% of that day, she was on her feet. She was so proud and excited that she had finally got the hang of it! She is now only walking. Within two weeks she has gone from crawling to only walking. The downside is that she now does not want to go to sleep. Ever!! It is tiring me out a little but, meh, it'll pass and she is so happy I don't care! Today we went for a little walk to the end of the road and last week she walked around her first park, choosing her rides and her explorations. Harriet is truly content and happy with her life right now.

Her comprehension is excellent. There are very few daily routines that she doesn't comprehend now. She can communicate what she wants very effectively too. She rarely screams for attention but she does 'tantrum' if she doesn't get her way. I am hoping this will get better when she truly understands that I will let her do anything that does not pose a significant risk to her or us (or the cat)!

Harriet is a blessing as I always knew she would be. There is no love like the love from Harriet.

Ok, that's enough.

I'm exhausted and I want to snuggle with everyone before they get to sleep!

Love to you all from our unschooling bubble.

N x




Friday, 12 December 2014

Misunderstanding and Prejudice.

As a mum of extra-ordinary, special needs children, it is increasingly difficult for me to read countless stories on a daily basis about the amount of misunderstanding and prejudice that is out there in the world of 'professionals'

Everyday I am corresponding with mothers (and some fathers) who are at the end of their tether (and sanity in some cases) when it comes to trying to communicate the needs of their children with those who are meant to be helping them.

There is a stunning lack of empathy and understanding amongst professionals when it comes to supporting a child's sensory, emotional and physical needs. This is particularly evident in the educational establishment, not to mention the paediatric setting and don't even get me started on Social Services.

Let me preface my criticism with this thought - of course there are some amazing professionals out there in the country (and world) but unfortunately they are few and far between. Couple this lack of professional understanding with a parents lack of medical vocabulary, and it can get very adversarial very quickly with the parent often being blamed for their child's needs.

The parents I am corresponding with are telling me that those charged with the safety, education and well-being of their children are simply not listening to them.

They are almost unanimous in their cries of, "They think I'm a bad parent." "They say I lack the skills to the manage my child effectively." "They think he/she is just naughty/attention seeking/dramatic/uncooperative." And the list goes on and is exacerbated by a further lack of adequate diagnosis from the paediatric teams. This is particularly true in the case of Pathological Demand Avoidance which is not in the manual and is therefore 'not even a real condition' but simply a parents excuse for poor behaviour. As a side note, not all parts of the country refuse to diagnose PDA making it even harder for parents to figure out where to turn.

Parents often face the above charges without the professional having spent much more than a few hours with their child and even when parents present video evidence, behaviour diaries and testimony from others who care for their child they are still ignored. How can this be?

The professional literature would have us believe that WE are the experts on our children (and of course, we are) and yet in reality, we are ridiculed, belittled and patronised and, more often than not, sent on parenting courses which, in my opinion, is the worst insult of all, especially if you are the parent of more than one child and the others are 'conforming' and 'behaving well' with no obvious difficulties. Surely this alone indicates that it is not the fault of the parent?

My son has Sensory Processing Disorder (a condition commonly diagnosed alongside an ASD) and he often needs deep pressure, movement breaks, quiet time, something to chew or fiddle with and more sensory feedback from his environment (a sensory diet). He can react violently to loud noises, bright lights, too many people and strong smells. As his mum, I know what might cause extreme reactions and I am able to monitor and control his environment when necessary to avoid the sensory overload. I know when he needs his ear-defenders or his chewing gum or even a great big squeeze!

I don't think these adaptations are unreasonable if it allows him to regulate himself and participate in 'normal' activities! They are a necessary part of his 'therapy' and have a huge impact on his behaviour. I think they should be respected, just as you would allow a diabetic to take their insulin, or a wheelchair user to be able to use a lift. Just because they are not visible, it does not mean they are not real.

Now, why can't the professionals accept and meet these needs too? If my son were at school, I would send him armed with a list of strategies and techniques to give to the professionals in order to help them understand and support him. I would give them a very long tip sheet about PDA and how best to get him on board with any given task so that he stands the best chance of being able to comply and enjoy what he is doing. What parent wouldn't?

However, the chances are, my carefully though-out tip sheet and long list of successful strategies would be ignored/forgotten in amongst the mass of other tasks that teachers/TA's have to do in a day.

Fair enough, I guess. They do have a lot to do (and lots of other needs to take into account) but, if they do not utilise our suggestions, surely the resulting punishment of our children is discrimination? They are inevitably punishing our children for their disability! How can this ever be acceptable?

I read about illegal exclusions and draconian punishments DAILY which are a direct result of teachers and TA's being unable to meet the needs of our very special children. I admit, these needs are high, but the professionals have a duty of care, and they accept that duty of care and when they fail to meet the standard of care our children deserve, what are the consequences?

The consequences are disastrous. Not only for the teachers, TA's and other children affected during the school day, but also for the child in question and just as importantly, for the child's family when the school day ends.

When that child goes home they will need to release all that tension, frustration, upset and sensory overload somehow. They will more often than not, explode through the door at home and unleash a storm of fury and pent up anger all over their loved ones.

And here enters another 'professional' who, when told about this set of behaviours, instantly thinks that there must therefore be a problem at home! How ludicrous! How uninformed! How insulting!

No, Mr or Mrs Professional, this does not mean there must be a problem at home. On the contrary in fact, it means that home is where this child feels safe enough to let it all 'hang out'. This is where they can release and be themselves without fear of punishment, ridicule or reprisal for their behaviour.

Home is where all of the unmet needs of the day manifest into behaviours which communicate just how badly that child has been failed by their care-givers during their day.

Parents have to deal with the fall out of a failing system only to be told that their parenting is at fault! That their child's behaviour is a result of their lack of boundaries and training on their part.

Sigh.

It is such a soul destroying situation for these parents. Not only is their child being failed, but now they are being blamed for that failure.

How can we begin to address this issue? 

Well, I think, knowledge, knowledge and more knowledge is the only realistic and long-term answer.

Gathering this knowledge from caring, empathetic professionals (Jude Seaward and Felicity Evans to name two I know of), other parents, adults with special needs (who have long since left behind their school days) and of course, listening to our children, is the best way forward.

Places like The Avenue, and volunteers like Joanne, Elaine and Sarah, who are dedicated to expanding the knowledge of parents and carers, is the future.

It is groups like The Avenue that will make the difference to our children by empowering parents and informing professionals.

It is only when parents are given the confidence and appropriate vocabulary that they will be able to effectively advocate for the rights of their special children.

So, please, please, please, spread the word.

Share your experiences.
Share your knowledge.
Share your thoughts and feelings.
Share with anyone who will listen.

Do not be embarrassed (or shy) about disagreeing with a 'professional'.
Do not be intimidated by their qualifications.
Do not let them claim that they know better than you if what they are saying goes against your instincts and ignores your knowledge of your child.

Trust yourself. Get informed. Ask questions.

Be the best advocate you can be.

N x

Tuesday, 9 December 2014

Controversial (or not) Christmas ideas. First published 2014.

I thought I would write a few words about Christmas and how it's going for us this year (and it is an excuse to post a picture of my tree which is, honestly, the best bit for me)!




So, for those of you with little ones who are at school, I imagine this time of year must be particularly challenging not least because of the following;
  • Mufti-days
  • Carol Services
  • Timetable changes
  • Nativity Plays
  • Decorations
  • Staff absence 
to  name but a few of the school based changes. 

But what about if we include;
  • School holidays
  • Visiting relatives
  • Christmas Trees and decorations
  • Furniture being relocated
  • Presents (and the accompanying anxiety)
  • All predictability vanished
  • Extra people everywhere
And perhaps even;

  • Parties
  • Father Christmas himself
  • Family events
  • Photo ops
  • Different foods
  • Different clothes
  • An abundance of chocolate/sweets and treats everywhere
  • Anxiety at its maximum surrounding the idea of being 'good/well behaved/deserving'

This is perhaps the most challenging time of year for us families with children (and adults) on the Autistic Spectrum so I thought I would share with you a few of my ideas designed to make life a little less stressful.

It is my hope that they will help things to  run more smoothly (and joyously), in your home too during this Christmas Season.

Preparation, Preparation, Preparation.

This cannot be said enough! Prepare to the nth degree!

Let your child create their own special visual timetable (in the form of an advent calendar maybe) so that they can anticipate all the events at school and at home. Let them talk to you about everything that they remember about the changes and how that makes them feel and what they feel they can and cannot cope with.

Enable them to choose, to as large an extent as possible, what they want to participate in and what they don't in the school calendar and respect their wishes. Be the best advocate for child that you can be and ensure that they get the Christmas they want too. Struggling is not a nice way to live at any time but at Christmas, when everyone else is smiling and happy, it must be even worse.

Bribery & Coercion

I think it is all too common that parents begin using Santa (and presents) as a 'carrot/stick' once Christmastime comes around. Children all over the Western world are worrying themselves half to death about their behaviour and whether or not they have been 'good' enough to deserve presents.

It is my firm belief that children will do well if given the environment in which they can do well.

Our special children are already doing their best all the time to manage without breaking down, so at Christmas, when there is so much more at stake, perhaps we should avoid pairing their behaviour with the promise of presents?

A lady told my daughter only the other day that if she 'screamed like that' Santa would hear her and she wouldn't get any presents. Not only was this extremely distressing for my daughter but it was horrible for me too! I do not use this kind of carrot and stick system in my house as a rule (I'm not perfect) and I have to say that to hear it come from a complete stranger was horrifying.

My daughter had been having a difficult (and busy) day and she was getting to the end of her ability to cope (several different shops, in and out of the car, hungry and over-stimulated) and this lady simply made things 100% worse. Sigh.

So, yes, try your hardest to not equate their behaviour with good/bad....they are trying their best.

Shopping/Trips

Please, please, please, unless you have absolutely no choice (or alternatively, they want to come along), let them stay at home! The world is a crappy place for those of us who shun noise, smells, lights, people, being touched and garishness right now! Unless your little one wants to plan a trip (and gets complete autonomy over what happens on that trip, including when to call it quits), don't make them come along.

Visitors

Keep the number of visiting friends and relations to an minimum, or, at the very least, let your child hide out in their room (or in the room that is most comfortable for them) and do not force them to socialise if they don't want to.

As an Aspie adult I can tell you, being made to kiss, hug and chat to people who are basically a load of strangers, is traumatic and exhausting and certainly not 'fun'!

Please be an advocate for your child and warn any visitors, that if they are bringing presents, to expect them to be unwrapped on sight if they are seen by said children! If they do not wish for this to happen then should wait for the opportunity to 'sneak' them in unseen when they can be safely hidden and not add to the anticipation that our children are already feeling with regard to unopened presents.

Also, tell these same visitors what treats/sweets/foods are acceptable in advance so you don't have repeated meltdowns over food.

If you can, decline any invitations that are non-essential. Visiting lots of different homes is stress-inducing due to the amount of unpredictability.

If you do over-do it our little ones will soon unravel and will not have a chance to regroup and recover, and will therefore end up not enjoying the best bits that Christmas has to offer.

Decorating

Allow your child/children to take whatever role they wish in decorating the house and tree (or not). If they are anxious about decorations perhaps put them up as late as you can in family areas and allow any other children to decorate their rooms so that they don't miss out.


I guess you may be curious as to how things are going with my brood in the run up to Christmas this year...well, let me tell you!

  • I let them choose when to put up the tree and allowed them to dress it with me (spiking my OCD to the max let me tell you!).
  • They are able to make a Christmas List the whole year through and add to it and take things away from it right up until December 1st ,when their lists are officially 'closed'. This is the same every year and it seems to work well and helps to avoid any anxiety associated with 'choosing' and being 'rushed' into decisions. (They also know that once December 1st arrives, there are no more 'incidental' treats as all my 'spare' money goes towards making Christmas awesome).
  •  This year, once Dominik had decided what he wanted, I went and bought it for him straight away and gave it to him. He knows he will only have stocking gifts on Christmas Day now (and any presents that people have managed to sneak past him) and this has enabled Dominik to focus on everyday...the here and now...and not on the 'what might or might not be coming' in x number of days. It is the anticipation for him that is the hardest part of present receiving occasions, particularly Christmas, with the Advent Calendar, people constantly asking about his list, people coming to drop off presents and being offended when he wants to open them in the instant he sees them, and of course, people reminding him to be 'good'. So, as much as I get lots of 'tutting' and 'sighing' from friends and relations, I don't care. He is not spoilt. He is happy and calm. This makes for a happier and calmer time for us all but especially for him. Phew. 
I have implemented all of what I have listed above and, touch wood, so far, this has been by far and away the most amazing build up to Christmas there has ever been in my house.

It is a magical time of year so here's hoping it is for all of your families too.

Merry Christmas!

N x




Sunday, 12 October 2014

All because of a Galaxy bar!

I read many stories from other parents (mostly mums) about the abuse they suffer at the hands of their highly resistant Pathologically Demand Avoidant children and to be completely truthful, I tend to sigh and move on quickly as they upset me.

I did think though that it might be useful to describe what happens in my house when Dominik, my PDA eldest son, has a bee in his bonnet about something.

At this current point in time, Dominik's 'bees' tend to be about food or money.

Dominik was once a slim, energetic, active child who pretty much ate what he wanted and didn't gain weight. Well that is not the case anymore. Over the past 18 months, he has slowly become more sedentary and more fixated on unhealthy foods.

I am a conscious shopper. I don't buy snacks as a rule, we don't have chocolate in the house nor do we have jelly sweets, ice cream or fizzy drinks. I buy organic, whole foods and I cook all of our meals form scratch. I get my Abel and Cole box every week and we drink fresh juices and enjoy home made soups on a weekly basis. I also have never had a microwave.

My children's health and well-being is something I take seriously and it is one of my top priorities. I spend plenty of time telling Dominik about essential nutrients and vitamins and we even went so far as to give the main vitamins personalities and characteristics so my children would remember why they were so important!

Well, this is all well and good, but with a PDA child, once the genie is out of the lamp, it is impossible to put it back.

We had a very close friend and neighbour who would regularly turn up at our house with the giant, £1 Galaxy bars and share them with my three. This honestly was not a problem because whilst I may buy very little of the sugar laden foods, I have no problem with others buying it for them. In fact, my mum relishes this part of being a nan!

Yesterday, Dominik decided he wanted a £1 Galaxy bar as he hadn't had one in a very long time. This is true, it has been months since we've indulged in a giant Galaxy, but I still not want him to have one as he had certainly had enough calories for the day already.

I took a stand and said that I would not go to the shop and buy one.

That's when it began. The screaming, the crying, the throwing toys around the room, the ripping my duvet cover off my bed, the hiding under the bed, the swearing, the punching, the 'you hate me', 'you're the worst mum in the world', refusing to have the shower that had already been put off since Thursday....and the list goes on.

Yes, this is hurtful, difficult for my smaller children to witness and downright exhausting (especially after an hour and a half) but I stuck to my guns.

What I often read in these scenarios is that other parents escalate the situation...adding on punishments and retributions for the current round of disruptive (panic/anxiety driven) behaviour whilst it is occurring. I do not do this.

I sit quietly, I maintain eye contact, I speak in a soft voice, I empathise, I reiterate my point and I finally say that I am done talking about the Galaxy bar today.

This is not always guaranteed to work. As I said, this particular event happened over an hour and half at top volume. In the end he went and curled up under my daughters bed. My son went to see if he was ok. He was ignored. My daughter went to see if he was ok. She was ignored. I sent him a text message (which is sometimes the best way to communicate to him that yes, I do care, but no, I will not talk about the issue any more) and I was ignored too.

He eventually came out and instantly complained that none of us cared about him. I pointed out that we had all tried to make him feel better....which he did not acknowledge as being true, but he did drop the subject.

In the end, the meltdown was over and we all got on with our evening. I needed to nip out to the shop and while I was there, I bought him a small Twix.

I took it home and gave it to him. He was over the moon. Full of gratitude and love because even though it wasn't what he had asked for, it was an acknowledgement of his current needs (and in my mind, a reward for moving on relatively quickly from a meltdown). He gave me half of one half. Proud mummy moment which also demonstrates that it is less about the chocolate, and more about the control.

No, it wasn't what he had demanded. Yes, it was small. But, most importantly I think, it left him feeling like he had not lost face. That he was still loved. And that yes, I did indeed care.

I'm sure there are plenty of people who will see this as rewarding 'bad behaviour' but I don't. For me, it was a way to connect with him, even when he is in the dark. He knows that his behaviour is unacceptable (after the event) and he knows that it won't help him achieve his goals (after the event). But he also knows, that I love him, and that if something is reasonable, and not extravagantly over-indulgent, he is likely to get it.

I try not to sweat the small stuff. For us, meltdowns, can become small stuff if they are handled with sensitivity and empathy.

N x


Dominik in Portugal with his precious 7Up!